DeafBlind Scotland is Scotland’s national charity and principal authority on meeting the complex needs of individuals living with deafblindness. Here, one of the charity’s Guide/Communicators, Christine Lawler, discusses her role – and the difference that improved pay would make to her and the people she supports

“In my job I never have a typical day. You can arrive at someone’s house and their plans have gone awry. I could be supporting someone to play chess in the morning, then in the afternoon support them to go shopping, study at college, attend a social work meeting or attend medical appointments and co-work with interpreters. I support their communication, their guiding, their mobility, their medical appointments.

Anything you want to do in your daily life, I support and enable deafblind people to do what they want. The individuals I support may not know it’s raining out, what’s in the news, basic information and it is part of my role to give them what I can see and hear at all times.

Although I’m within ‘social care’, I’m a guide communicator and a deafblind manual interpreter. But people don’t necessarily recognise the importance of my role. It’s about supporting and enabling someone live independently in their own home. They don’t know that they’ve run out of milk or that their bread’s mouldy… I support them to write a shopping list and while we are out I give full information on what offers are there as well as information on prices, ingredients and cooking times etc.  Without this they can’t make informed choices. Information giver is one of the main things I have to be. I have to see, hear, tell them what’s there. I do that constantly.

Trust and confidentiality is so crucial for deafblind people. They have to trust that I will do my best to support them in whatever they wish to do

Some of the public recognise what I do and the vital importance of it especially at the football. I support a deafblind man to go to football, but he doesn’t sit in the disabled area. He’s not disabled in any way at football. He’s one of the Bhoys. What I see on that pitch I draw on his hand. Every single kick of the ball. Who’s playing, who scores, who’s taking the corners. Everything happens for him at the exact same time. In that situation, he may be deafblind – but he is himself, supporting his team. He just needs that additional support.

That relational aspect of the role is so important. I tend to support individuals who are profoundly deaf and fully blind who have acquired deafblindness. They are aware that I follow DBS policies and procedures and codes of practice linked to SSSC.  They have trust in our professional relationship that I won’t overstep boundaries.

If the Scottish Government were to increase hourly pay it would certainly make me feel more valued in what I do. On average it takes six years to be a well-trained guide communicator. I have been studying over the course of nine years. I can go to Lidl or Sainsburys and get more an hour but I’ve worked hard to be where I am and I still work hard to keep up standards. I want to better myself because many deafblind people need this level of communication and if I can’t match that, I’m letting everyone down.

But I’d like to be recognised for the studying and effort I’ve put in – achieving the BSL level 6, Deafblind Manual Interpreting qualification and my Diploma in DeafBlind Studies, which is affiliated with Birmingham University, and which alone took two years.

The impact of all this training on deafblind people is about trust and them knowing that I am giving them the right information. And if I can’t give them this, they can’t make informed decisions.

I want deafblind people to be seen as part of society and part of their own community. That’s so important to them – to be seen and heard in their world; to feel they have worth.”

Find out more about DeafBlind Scotland